Health

Resources and tools for professionals and parents

A Picture of Health – Easy Read information can help people with learning disabilities better understand health, illness, lifestyle and treatments (NHS South Englan).

Widgit Health – Easy read and communication support for healthcare and medical professionals.

Dentists and Disability – resources to support dental hygiene (Ideas).

Blood Tests – by Qld Centre for Intellectual and Developmental Disability.

Information for health professionals: Understanding behaviour change for people with intellectual disability or autism spectrum disorders – Health professionals work across this community with many different patient groups, including people with intellectual disabilities or autism spectrum disorders. Some patients with an intellectual disability or autism spectrum disorder may have difficulty using words or language because of their disability. Their
behaviour may be their main or only method of communication (Monash Health).

Eating well: children and adults with learning disabilities Nutritional and practical guidelines (The Caroline Walker Trust).

Enabling Health: Taking action to improve the health of people with a disability – An evidence-based, health promotion resource outlining actions that can be taken to address the socially produced causes of ill health experienced by people with a disability (VicHealth, 2014)

Supporting Every Smile – How you can support the oral health of a person with disability; includes guides, factsheets, template, communication symbols and other tools (DHS Victoria).

Disability and Health inequities in Australia – This research summary defines disability and provides an overview of information regarding the health of people with disabilities and the underlying social determinants, using the population-based data that is available (Victoria).

Work Health Organisation – Disability and Health fact sheet.

Pain Guide for Parents of children with intellectual disability – This guide aims to help the parents of children with severe intellectual disability and/or communication difficulties understand how pain may affect their child. Reproduced by kind permission of Cerebra in the UK www.w3cerebra.org.uk (https://ddwa.org.au/resources/).

Disability and health data compendium – This compendium outlines the main national sample surveys, for children and working age Australians, that include information on disability and health (1 March 2019, George Disney, Marissa Shields, Eric Emerson, Gwynnyth Llewellyn, Centre of Research Excellence in Disability and Health).

Access to health services by Australians with disability December 2017 – This web report uses data from the Australian Bureau of Statistics’ (ABS) Survey of Disability, Ageing and Carers (SDAC) to examine access to a range of health services by people with disability aged under 65 who lived in the community.

Epilepsy Australia

Just Checking website by Family Planning NSW – Easy Read materials for its Just Checking website on preventative health issues. At the website you will find lots of resources made by and for people with intellectual disability. There are also resources for support workers, parents and carers.

My Health Matters – a folder in Easy English to improve communication between people with an intellectual disability and healthcare workers.

Continence Support Now – The pocket guide for in-home disability and aged care workers providing bladder and bowel support

Legal Health Check-Up Resource – The Legal Services Commission (SA) has developed a legal education resource designed to assist the public prioritise potential legal concerns.

Scope (Victoria) has a collection of free resources available for you to download.

Guide for Promoting Good Lives through Healthy Eating and Physical Activity – applicable to both adults and children with disability. The Guide directs service providers to have policies, procedures and mechanisms in place to ensure a good life for people with disability, May 2018, Dept of Human Services, SA.

Health Guide for Families – Down Syndrome Australia and Dementia Australia worked together with Dr Jennifer Torr of Monash University to produce this resource for families:

Health videos using Auslan: Health information in Auslan is available from the Victorian Government. Topics include raising children, diabetes information and dispute resolution.

 

Resources for people with intellectual disability to assists with hospital and Dr’s appointments and health issues

What is Healthy Mind? – Healthy Mind is an online Easy Read tool designed to help people with Intellectual Disability (ID) to recognise and regulate their thoughts and feelings (Black Dog Institute).

What Is Diabetes – by Qld Centre for Intellectual and Developmental Disability.

Blood Tests – by Qld Centre for Intellectual and Developmental Disability.

Self-help Booklet Series online (Sleep, Feeling down, Being active, Solving problems etc) – From Scottish Commission for Learning Disability

The right of people to make their own medical decisions – The law says people have the right to make their own medical treatment decisions, providing they have the decision-making capacity to do so, and to receive the support they need to make such a decision (Office of the Public Advocate, Victoria).

Health information that is easy to read – Easy read information about a range of topics such as visiting a doctor, going to hospital, medication, etc). Centre for Intellectual Disability.

‘Healthier Lives’ fact sheets – If you support a person with intellectual disability, our fact sheets will help you understand health issues and navigate the health system. There are 30 topics, from diagnosis of disability to making complaints about health services (CID).

A Guide to Breast Health – SA Health. A pictorial resource booklet that has been adapted from BreastScreen WA, to assist women with low literacy, sight impairment, intellectual disability and their families and carers to be aware of the importance of breast health and regular breast screening.

Autism accessible menstruation resourcesAmaze is proud to produce autism accessible menstruation resources in partnership with Cottons  and Family Planning Victoria.

Just Checking website by Family Planning NSW – Easy Read materials for its Just Checking website on preventative health issues. At the website you will find lots of resources made by and for people with intellectual disability. There are also resources for support workers, parents and carers.

Wellbeing record is a resource that can be used to record the wellbeing of a person with intellectual disability and any changes that occur.  It is designed to be used to help health professionals understand what wellbeing looks like for the person, and understand any changes. University of NSW Department of Developmental Disability Neuropsychiatry resource https://3dn.unsw.edu.au/wellbeing-record

Your Dental Health: A Guide for People with a Disability, Their Family Carers, Friends and Advocates – a guide written for Australians with intellectual disability that outlines how to look after your teeth and gums (InclusionDesignLab).

Your-Dental-Health-WA-version-web – This guide has been written for people with intellectual disability that outlines how to look after your teeth and gums. Further, it demystifies options in seeking dental care (such as public versus private) and what to expect during a visit to the dentist (https://ddwa.org.au/resources/).

NSW Council for Intellectual Disability – Easy read health fact sheets. NSW Council for Intellectual Disability has a series of easy read health fact sheets available for free download. Topics include: Me and My Doctor, Mental Health Checklist, Me and My Medication, Some Signs of Sickness and Going to Hospital for Surgery.

A guide to Breast Health (PDF 994KB) (opens in a new window) is a pictorial resource booklet that has been adapted from BreastScreen WA. It assists those women with low literacy, sight impairment, intellectual disability and their families and carers to be aware of the importance of breast health and regular breast screening.

Admission 2 Discharge: Information for people with disability, parents, disability workers and medical staff.

A2D Together Folder is to help hospital staff provide patient-centred care when a person with a cognitive disability is admitted to hospital. The information aims to improve their hospital journey from admission to discharge.

Going to Hospital: Easy English Fact Sheet.

 

NDIS related guides and resources

NDIS and Health Working Together – Summer Foundation has released a new guide to assist health and NDIS staff to working with people with disabilities- from hospital admission to discharge.

How the National Disability Insurance Scheme (NDIS) and health services will work together Supporting people with disability to participate fully in community life – Factsheet.